Email lpt.research@nhs.net to find out more about the studies below.
Enroll-HD, Huntington's disease
Enroll-HD is a worldwide observational study open to people with, or at risk of, Huntington’s disease (HD).
Enroll-HD is a worldwide observational study open to people with, or at risk of, Huntington’s disease. It aims to understand the experience of those living with Huntington’s disease and how the disease changes over time. This study has been open in LPT for over 10 years.
PI: Dr Reza Kiani
R&D Delivery Team: Joy Fellows, Lee Jones
HealthE-RND, Neurodegeneration and Huntington's disease
HealthE-RND aims to develop an eHealth platform to improve quality of life in people affected by rare diseases.
HealthE-RND aims to develop an eHealth platform to improve quality of life in people affected by rare diseases. Over 3 years the study team aims to develop an eHealth platform and a quality of life questionnaire. The study is currently focusing on Huntington’s disease, to study whether the platform is useful. You can find out more about HealthE-RND here: https://healthe-rnd.eu/
PI: Dr Maria Dale
R&D Delivery Team: Joy Fellows, Lee Jones
iMARK-HD, Huntington's disease
iMARK-HD is a study designed to assess changes in the brain as a result of Huntington's Disease using two types of imaging scans, PET and MRI.
iMarkHD is a study looking for an indicator that can give information about the progression of Huntington’s disease by using MRI scans (which observes the structure of the brain) and PET scans (which observes the function of the brain). By observing these indicators, researchers can better understand how the disease develops. This work could potentially lead to further research into early diagnosis and treatments.
PI: Dr Reza Kiani
R&D Delivery Team: Joy Fellows, Lee Jones
Later Stage HD Assessments, Huntington's disease
This study aims to develop tools that capture how HD affects the health and well-being of people who have had signs and symptoms for several years
This study aims to develop tools to see how the later stages of Huntington’s disease affect individuals. The study is evaluating two common assessments that have been adapted for telephone interview. This study is open to Enroll-HD participants who are in mid- to later stages of HD and their companions.
PI: Reza Kiani
R&D Delivery Team: Joy Fellows, Lee Jones
The information on this page is correct as of December 2024.